I think that they have been conversing to much! lol Hey I tried to call you to ask you about making Orange rolls and friday but you never called me back:( Also I want to do cabbage rolls this week and thought that you might want to join us for dinner:) Let me know.
Alise- of course I remember you!!! It's great to be back in contact.
My daughter Elisabeth has a small head too....but not from Microcephaly as we originally thought. Her skull has fused prematurely (craniosynostosis) and therefore is not growing normally. We expect surgery this summer to correct the skull. She was also born with hydrocephalus (water on the brain) and had a shunt placement surgery at 1 day old. As a result of brain damage from the hydrocephalus she is cortically blind, epileptic, and has several brain malformations. She was born on September 24th...when was your little boy born??? It looks like they might be about the same age.
I'll add you to my favorites! Glad you found me :)
4 comments:
How fun! It looks like you are completely enjoying your time in Rexburg. There is so much to do-escpecially when it is warm outside.
I think that they have been conversing to much! lol Hey I tried to call you to ask you about making Orange rolls and friday but you never called me back:( Also I want to do cabbage rolls this week and thought that you might want to join us for dinner:) Let me know.
Alise! I have a blog now! we should be friends! managersspecial.blogspot.com
Alise- of course I remember you!!! It's great to be back in contact.
My daughter Elisabeth has a small head too....but not from Microcephaly as we originally thought. Her skull has fused prematurely (craniosynostosis) and therefore is not growing normally. We expect surgery this summer to correct the skull.
She was also born with hydrocephalus (water on the brain) and had a shunt placement surgery at 1 day old. As a result of brain damage from the hydrocephalus she is cortically blind, epileptic, and has several brain malformations. She was born on September 24th...when was your little boy born??? It looks like they might be about the same age.
I'll add you to my favorites! Glad you found me :)
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