Tuesday, January 28, 2014
As Juan and I have had our ups and downs, I feel a complete love for him and I think that as we grow, and fight, and makeup that it brings us closer, we realize what we have for each other, and we learn to talk and work things out, that we try harder for our relationship. As we have talked about what we can do to improve that area of his life, which affects our relationship, yesterday he said we needed to have FHE. something we don't do in this house. So I got on that, and we had a great one with the kids! I hope that we can continue doing something like this.
I am trying and trying everyday to get through to Keenan on so many topics. Everyday is a trial for us, and we have a hard time. I am trying to talk to him and work on things, and then telling him how proud of him I am that he was working on listening, and complaining, I hope that he gets it. Parenthood is hard! If I knew how hard this would be, I would have considered not having kids! But the reward is far greater and I am so grateful these are my kids! I love them to pieces but everyday I have to remind myself that! :) Im sure most parents get that!
There is no question that Damon is a huge trial in our lives. And his trial is to live in that body. I have such hard days that I question everything, I wonder why he was sent to our family, that I didn't ask for a child with special needs, and why does everything have to require so much work with him. It is just flat out hard! I tell myself that I am like every other mom and that it's not any different, but it is! I think with him being my first, I don't know any different. But I am in complete awe that Heavenly father is aware of me, aware of Damon, and aware of my family. It doesn't take long for things to work out and to slap me in the face and he lets me know that he has us taken care of. We don't get a lot of help with Damon. Yes he goes to school full day which in itself is a huge help! We get a form or Medicaid that helps with his formula and what not. But as far as help as breaks we get close to zero. For the past five or so months, instead of respite hours we were asking for money to reimburse us for diapers because his insurance did not cover them. They are about seventy dollars a month. This month, he was put back onto an insurance called Family Care. Great! no so great! having this insurance meant that he has to switch all new drs, can't go through the vendors he is already set up with for his formula and bags for his feeding pump, diapers, and equipment. I spent countless hours on the phone trying to get it all figured out. Luckily for us, as of yesterday, he was put back to where he was at Medicaid wise, Health Share Care Oregon, so he can keep all of his dr's again! yah!! So today I made phone calls to get his supplies going again, dr appts made! I also had an evaluation for him with a new plan called the K-plan. Well come to find out, starting Feb 1, he is eligible for 119 hours of respite care a MONTH during school hours, and 149 hours a MONTH during summer hours! Um for January, we currently have 4.75 hours for the month! Wow wow wow! They also cover many more things! A complete answer to our prayers! I can get help at home with him, we can go out and do things that we wouldn't other wise be able to do as a family, like day beach trips, hiking, biking, I mean this is huge for our family! I can't wait to see what our lives are going to be like having this help!
Niko and I are buddies during the day! That boy has me wrapped around his little finger its not even funny! He is an awesome kid and such a blessing to this family! Him and I spend our mornings at the gym, runnings errands, or hanging out at home together. He still isn't talking much but I can figure out about 50% of what he wants. No interest in potty training yet, but I'm ok with that! He is likely our last baby so Im sucking up all I can with him!
Monday, January 20, 2014
Gratitude journal week 2
Him to do something and he says "k" to everything! Love that boy!
Wednesday, January 15, 2014
Struggles
Keenan said that some day he will get to sleep in white clothes like us.
Keenan learning shapes and words in spanish
Niko is trying to talk more. I understand his mumble and jumble about 50% of the time.
Damon has had a double ear infection. Been using drops. 4th one since tubes and adnoids removed the end of Aug. We need to make an appt to see ENT abiut that.
Found someone in my ward with a degree in child development who wants to be his respite worker. We find out this week how many more hours we will be getting!
First week of feel great in 8 started again! So much easier this go round! Almost a perfect score!
Monday, January 13, 2014
Gratitude Journal
Today I am grateful such great people around me. I am so amazed at the amazing people that I get to be in contact with. I have so many that I feel that I can talk to and release or vent or just talk to.
You know this gratitude journal is an amzing thing. Journaling in general is such an amazing thing. I can look back and see the progress even in a short amount of time. I can't help but be grateful today for an amazing Heavnely Father who never ceases to amaze me with his tender mercies and to never let me down. Not even for a second. As I wrote earlier, I had been questioning so many things as a mother. Not for one second do I not love being a mother but certain aspects about it. Today I was given such a tender mercy that I have no doubt in my mind, that Lord has placed his hand in my life again. We are never to be left alone and even more so when you have a child with special needs. I need this child in my life more then he needs us. If I would step back and realize what an awesome gift I have being able to be his mom, I would be so much better. But I am human, and I mess up. But man if I can't be humbled!
Friday, January 3, 2014
Goals or no goals
I'm not sure how I feel about making new goals for the new year but I have so much that I am looking forward to! This year is looking to be a great one already! I have things planned and am already wondering if this year will be over before we know it. My main focus is in fitness and eating healthy. If course this comes after my family. They are and always will be my main focus. With that said here we go!
Run the hippie chick half marathon mothers day weekend
Rugged maniac 5k
Warrior Dash
Increase my average mile time.
Continue to find healthy foods to eat and less sugary foods.
I would love to redo the kids bathroom
Landscape front yard- flowers, bark, plants
Write down important dates, things the kids say, and put them in a jar to write/read down at the end of the year
Sew something. More then just a small task.
Save more money and use my credit card less
I hope that I can look back and see that I accomplished these. It would be very rewarding.